Jaxon's Story

In 2017, our lives were turned upside down.

When our son Jaxon was diagnosed, the shock was almost impossible to process. Overnight, we were thrown into a world we knew nothing about — filled with unfamiliar medical terms, difficult decisions, and an overwhelming sense of fear about what the future might hold. We didn’t know where to look for answers. We didn’t know who to trust. Most of all, we didn’t know anyone who truly understood what we were going through.

But then we found something that changed everything — connection.

We found families who had already begun this journey. Parents who were willing to share their stories, their hard-earned knowledge, and their hope. Their guidance helped us find our footing during one of the most difficult seasons of our lives. From that moment on, we knew that if we ever had the opportunity, we would do the same for others.

That became the first mission of Jaxon’s Superheroes Foundation — to be a trusted, peer-to-peer source of support and information for families navigating life after diagnosis.

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From Gratitude to Purpose

As our journey continued, we were humbled by the incredible community that rallied around us. Through fundraisers, events, and generous donations, we were able to give back in ways we never imagined. Together, we raised more than $75,000 — each year growing the impact even more.

Before launching our own foundation, 100% of those funds were donated to the Muscular Dystrophy Association, an organization that supported us for three years. Those dollars helped fund critical research and drug development, sent local children with neuromuscular diseases to summer camp, and provided life-changing resources for families just like ours. We remain deeply grateful for their work and will always continue to support their mission.

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The Moment Everything Became Clear

In the spring of 2020, Jaxon’s mom, Chelsea, had an idea that would change our path.

She began researching service dogs — incredible companions trained to help with everyday tasks like standing up, getting dressed, opening doors, and gaining independence. But we quickly discovered a major obstacle: the cost. To bring a service dog home for Jaxon, we needed to raise $17,500 — and that was only half of the total expense.

So we got to work.

With the help of generous donors and an unforgettable community pop-can drive that raised nearly $10,000, we reached our goal. Jaxon was fully funded and ready to receive his dog. In that moment, a powerful realization hit us:

If we could do this… why couldn’t we help other families do the same?

Why couldn’t we create something bigger — something lasting — that would remove barriers for children living with disabilities?

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A New Beginning for Families Like Ours

That realization led to the launch of Jaxon’s Superheroes Foundation.

Today, our mission is simple but deeply personal: to be an all-inclusive, one-stop source of support for families navigating the uncertainty that follows a diagnosis like Duchenne. Whether it’s helping families fundraise for service animals, wheelchairs, adaptive equipment, or handicap-accessible vehicles — or simply connecting them with trusted medical information, top specialists, or emerging therapies — we are here.

Sometimes families just need guidance.
Sometimes they need resources.
Sometimes they just need someone to listen.

Above all, we want every family to know this:

You are not alone.
A diagnosis does not mean the end of your journey.
It can be the beginning of a new one — filled with strength, community, and hope.

— The Hunt Family