Understanding Duchenne
Start with understanding.
Move forward with support.
Find a clear starting point and trusted organizations for learning about Duchenne muscular dystrophy.
What is Duchenne?
Duchenne muscular dystrophy (DMD) is a genetic condition that causes progressive muscle weakness. It involves changes affecting dystrophin, a protein that helps protect muscle cells.
A diagnosis can bring questions about care, accessibility, school, and daily life. Your clinical team can guide medical decisions; our foundation helps families explore practical support and connection.
Explore family supportEducational information only. Talk with your healthcare team about individual care.
For families, clinicians & researchers
Use the organizations below as starting points for disease education, care resources, research updates, and community programs.
For collaboration or family referrals, connect directly with our foundation.
Connect with usTrusted places to start
Muscular Dystrophy Association
Neuromuscular disease information and support
Parent Project Muscular Dystrophy
Duchenne information, care, and advocacy
CureDuchenne
Duchenne research and community resources
Team Joseph
Duchenne family assistance and research support
4 Paws for Ability
Information about service dogs